Our Impact in 2024
Through motivated, inspired, and challenging work, 2024 empowered those living with ALS throughout Illinois.
Our ALS Staff, Board of Directors, Ambassadors, and Volunteers have been, and always will be, committed to connecting our local ALS community so that no one faces an ALS journey alone. We are privileged and proud to serve our community.
489
People with ALS Served
Care Services Successes
As we look back on 2024, ALS United Greater Chicago continued the hybrid programs and services that fit our patient community during the pandemic while also exploring opportunities to expand. Not only did our programmatic options increase, offering a rich and robust selection of educational workshops and support groups, but our team continued working around the clock through virtual platforms to keep the lines of communication open. We provided continuity of care to 489 individuals living with ALS through ongoing virtual support, equipment training, multidisciplinary treatment options, and respite care grants.
Living Well with ALS
This educational program covers a variety of ALS-related topics ranging from the latest in worldwide research to advice and updates from ALS care experts. The program features presentations by invited guests and staff followed by a Q&A session.
2025 Living Well with ALS Webinar Dates | February 11th, May 13th, & August 12th
408
Living Well with ALS Participants
111
Caregivers Trained
Caregiver Boot Camp
The ALS United Greater Chicago Caregiver Boot Camp program is designed to inform family, friends, and non-professional caregivers about the role of a caregiver, how to use common pieces of medical equipment, and provides an opportunity to ask questions to be prepared to assist a loved one living with ALS.
2025 Caregiver Boot Camp Dates | June 21st & November 15th
United to Discover
United to Discover is ALS United Greater Chicago’s research initiative aimed at bringing the latest advancements in ALS research to the forefront of our community.
Accelerating Medicines Partnership (AMP) ALS initiative aims to expedite the development of effective treatments for ALS, providing hope and progress for those affected by this relentless disease.
The ALS Research Innovation Program provides innovation grants to fund novel yet scientifically rigorous ideas that can transform our understanding of ALS.
Advocacy
ALS United Greater Chicago is a leader in advocating for policies that would improve the lives of those living with ALS, their families, and caregivers.
Our advocacy work focuses on educating and mobilizing members of Congress and the Administration in a nonpartisan way to achieve our mission of discovering new treatments and a cure for ALS, and serving, advocating for and empowering people living with ALS to live their lives to the fullest.
Where Else Are Your Donations Going?
640
People attended 98 support groups
725
Care Plan Visits
600
Patients received care and clinical management of ALS through one of our 6 multidisciplinary centers