News & Stories

Support Courage and Community – Meet Susan

I want to share with you the inspiring story of Susan Blaha, an individual who embodies the spirit of courage in the face of ALS. 

Susan, diagnosed with ALS in 2009, has faced this challenging journey with strength and resilience. Susan, along with her husband Jeff, has been an active member of the Greater Chicagoland Support Group for years. Her infectious smile has been a beacon of hope and warmth at every meeting. 

In 2019, Susan and Jeff represented our community in Washington, D.C., advocating for individuals and caregivers affected by ALS. They’ve also played a crucial role in raising awareness through events like Lou Gehrig Day with the Chicago White Sox and ALS Walk events in their community.

In recognition of her extraordinary courage, I was honored to present Susan with the Iron Horse ALS Courage Award. Her story is a testament to the resilience of the human spirit and the importance of community support. Susan’s message to others living with ALS reflects her wisdom and compassion: “Live each day as it comes, day-by-day. And don’t be afraid to ask for help.”

We invite you to be a part of this incredible journey by supporting ALS United Greater Chicago. Your donation will help individuals like Susan access vital resources, contribute to spreading awareness, and foster a supportive community for those facing the challenges of ALS.

To make a meaningful impact, please visit Your generosity will enable us to continue providing assistance and comfort to individuals and families affected by ALS.

Thank you for considering this important cause. Together, we can make a difference and support those who courageously confront ALS every day.

Warm regards,

Julie M. Sharpe
President & CEO
ALS United Greater Chicago

At ALS United Greater Chicago, we shine a spotlight on extraordinary individuals who confront ALS with undeniable strength and spirit. Among these heroes, Susan Blaha stands out for her resilience and unwavering positivity. Diagnosed in 2009, Susan’s journey with ALS is one of courage and hope. Alongside her husband, Jeff, Susan has been a pillar of the Greater Chicagoland Support Group, uplifting everyone with her infectious optimism. From advocating in Washington, D.C., to raising awareness at local events, Susan’s contributions are invaluable. Her life, honored with the Iron Horse ALS Courage Award, inspires us all to support each other in the fight against ALS. Your contribution helps us continue providing essential resources and fostering a community of support. Let’s unite in courage and kindness, making every day count for those brave souls facing ALS.

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