ALS Caregiver Boot Camp
The ALS Caregiver Boot Camp, created by ALS United Greater Chicago, is designed specifically for family and friend caregivers supporting a loved one living with ALS.
This program gives you practical knowledge, confidence, and tools to navigate the day-to-day realities of caregiving, including understanding disease progression, managing symptoms, using equipment, planning for emergencies, and taking care of yourself. You’ll also learn how to plan for long-term care and make informed decisions that align with your loved one’s wishes.
How to Use this Program:
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Watch in order to follow the progression of topics as they build on one another.
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Or use the Table of Contents below to jump to specific topics you want to revisit at any time.
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Reach out to your ALS United care services coordinator if you have questions about your loved one’s ALS journey, care needs, or any resources available to you.
No one should face ALS alone. This program and the ALS United team are here to guide and support you and your loved one living with ALS every step of the way.
Table of Contents:
- Introduction
- Understanding the Role of a Caregiver
- ALS Overview, Care Team, and Advocacy
- Personal Care Considerations and Challenges in ALS
- How to Use a Mechanical Hoyer Lift
- Swallowing and Communication in ALS
- Strategies for Nutrition in the Stages of ALS
- Respiratory Care in ALS
- Navigating Supportive Care Options in ALS
- Difficult but Important Conversations
- Closing Thoughts
Introduction
Understanding the Role of a Caregiver
ALS Overview, Care Team, and Advocacy
Personal Care Considerations and Challenges in ALS
How to Use a Mechanical Hoyer Lift
Swallowing and Communication in ALS
Strategies for Nutrition in the Stages of ALS
Respiratory Care in ALS
Navigating Supportive Care Options in ALS
Difficult but Important Conversations
Closing Thoughts
You Are Not Alone
We hope these sessions have provided practical tools, guidance, and reassurance for your journey as a caregiver. Remember, ALS United Greater Chicago and the nationwide ALS United network are here to support you every step of the way.
Register with Us
ALS United Greater Chicago's team of professional Care Managers provide expert advice and assistance for people living with ALS, free of charge. Our office is open Monday through Friday. Please contact us at 312.932.0000 or email us at info@alsunitedchicago.org.