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Living Well with ALS Educational Webinar

May 7 @ 6:00 pm - 7:30 pm

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This presentation is designed to provide crucial support and resources for young individuals impacted by ALS within their families. Recognizing the significant challenges faced by children and youth who have a loved one battling ALS, this presentation offers a range of tailored resources to address their emotional, social, and practical needs. The aim is to empower these young individuals, equipping them with the tools and support necessary to navigate the complexities of living with a family member affected by ALS.

Dr. Melinda S. Kavanaugh, PhD, MSW, LCSW, is a seasoned clinician and researcher specializing in neurological disorders such as Huntington’s disease, Amyotrophic lateral sclerosis (ALS), Parkinson’s disease, and Alzheimer’s disease. Her translational research focuses on youth caregivers, conducting studies in the United States and South Africa. In the U.S., she led a national study on ALS caregiving youth, resulting in the development of educational materials for affected families. In Milwaukee, she received NIH funding to study Alzheimer’s caregivers in minority communities. Dr. Kavanaugh’s international work includes a capacity-building project in South Africa, collaborating with Stellenbosch University and the Motor Neuron Disease Association. She also teaches courses in social work and co-leads interprofessional workshops on healthcare. She created the care and support programs for youth “YCare”, written several books for youth and families and developed collaborations around the world adapting and translating her books and programs.

Our speaker will be available for a Q&A session with attendees following the presentation. This virtual event is free of charge. For questions about the program, contact Joumana Baroody at joumana@alsunitedchicago.org.

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