News & Stories

Embracing Legacy, Igniting Hope with ALS United Greater Chicago

I’d like to share with you the story at the core of ALS United Greater Chicago—an organization founded on a family’s enduring commitment to the fight against ALS.

In 2004, Martha and Toby Kucharski established ALS United Greater Chicago, in memory of their husband and father, Edmund Kucharski. A former Chicago alderman and prominent public leader, Edmund’s battle with ALS in 1994 inspired the creation of an organization dedicated to supporting other individuals facing the challenges of this devastating disease in Chicago and beyond.

After Martha passed away in 2005, Toby continued to champion the cause, serving on our organization’s board, and advocating for the ALS community both locally and nationwide. As we approach the organization’s 20th year in operation, we reflect on the impact it has made, touching the lives of thousands in Chicagoland, Central IL, Northern IL, and parts of Northwest IN.

The story of the Kucharski family is one of love and dedication. It is a testament to the enduring spirit that fuels ALS United Greater Chicago. In these two decades, the organization has provided cost-free care services to countless individuals and families, offering vital resources, support, and fostering a sense of community in the face of ALS.

We invite you to become a part of this legacy by supporting ALS United Greater Chicago this season. Your donation will help us continue providing invaluable assistance to those affected by ALS, contributing to awareness efforts and building a stronger, more supportive community. Make a meaningful impact today by visiting Your generosity will play a vital role in shaping the future of ALS support as we look ahead to our 20th year of operation in 2024.

Thank you for considering this important cause. Together, we can honor the legacy of the Kucharski family, support those courageously confronting ALS every day, and shape a brighter future for the ALS community.

Warm regards,

Julie M. Sharpe
President & CEO
ALS United Greater Chicago

ALS United Greater Chicago stands as a beacon of hope and a testament to the power of community in the fight against ALS (Amyotrophic Lateral Sclerosis). Inspired by the enduring legacy of Edmund Kucharski, a former Chicago alderman whose battle with ALS sparked a movement, ALS United Greater Chicago was founded. For nearly two decades, it has been our mission to provide cost-free care services, vital resources, and unwavering support to individuals and families facing the challenges of ALS. By fostering a strong sense of community, we offer not just assistance but a network of support, encouraging those affected to confront ALS with courage and determination. As we move towards our 20th year of operation, we invite you to join us. Your contribution helps sustain our care services, awareness efforts, and advocacy, ensuring a brighter, more supportive future for the ALS community. Together, we can honor the legacy of those who have confronted ALS, support the ongoing fight, and continue to ignite hope within our community.

Share This Page: