ALS United Greater Chicago Blog Posts

Letters of Intent for ALS Research Funding Accepted April 15 – May 15

April 14, 2025 Comments Off on Letters of Intent for ALS Research Funding Accepted April 15 – May 15

ALS United Greater Chicago, in partnership with the ALS Network, proudly announces letters of intent for ALS research funding will be accepted April 15 – May 15, 2025.  “As part…

$40M for ALS Research Protected. Let’s Keep Going.

March 19, 2025 Comments Off on $40M for ALS Research Protected. Let’s Keep Going.

The ALS community has secured an important win. The Department of Defense’s ALS Research Program (ALSRP) will remain funded at $40 million for fiscal year 2025. At a time when…

URGENT ACTION NEEDED: Protect ALS Research Funding in the Senate

March 12, 2025 Comments Off on URGENT ACTION NEEDED: Protect ALS Research Funding in the Senate

The Threat to ALS Research The House has passed a Continuing Resolution (CR) that now goes to the Senate, containing a serious threat to ALS research funding. This CR slashes…

Sunny Side Feature: Creative Connections Through Crafting

February 25, 2025 Comments Off on Sunny Side Feature: Creative Connections Through Crafting

When a loved one has ALS, finding ways to connect as a family can be both meaningful and comforting. Simple, hands-on activities can open the door for conversation, creativity, and…

40 Miles for 40 Years: Kristin McCoskey’s Race for ALS

February 20, 2025 Comments Off on 40 Miles for 40 Years: Kristin McCoskey’s Race for ALS

Season’s Sunflower Hour is a monthly live show from ALS United Greater Chicago, bringing you expert insights, community stories, and the latest updates in the fight against ALS. Each episode…

NIH Must Reverse and Retract Cap of Indirect Cost Rates

February 18, 2025 Comments Off on NIH Must Reverse and Retract Cap of Indirect Cost Rates

ALS United Greater Chicago stands with the ALS community nationwide in opposing devastating cuts to research grants at the National Institutes of Health (NIH). We strongly urge the National Institutes…

Clumsy Sex and ALS: Guidance for Couples on Intimacy, Romance, and a Spirit of Play

February 13, 2025 Comments Off on Clumsy Sex and ALS: Guidance for Couples on Intimacy, Romance, and a Spirit of Play

Recorded on February 11, 2025. This presentation explores sensitive topics around caregiving, intimacy, and ALS. Viewer discretion is advised. Can love fires still burn in caregiving relationships? Linda Levine shares…

15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

February 7, 2025 Comments Off on 15 ALS Nonprofits Collaborate to Form ALS United: A New Era of Innovation and Impact

Feb. 7, 2025 – PRNewswire – Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS…

Legacy of Love: Kathi and Frank Mungo on Her Family’s Valentine’s Day Dance for ALS

February 6, 2025 Comments Off on Legacy of Love: Kathi and Frank Mungo on Her Family’s Valentine’s Day Dance for ALS

Season’s Sunflower Hour is a monthly live show from ALS United Greater Chicago, bringing you expert insights, community stories, and the latest updates in the fight against ALS. Each episode…

20 Years of Service

January 2, 2025 Comments Off on 20 Years of Service

ALS United Greater Chicago’s journey began with a mission to support individuals and families impacted by ALS. Over the past two decades, the organization has grown from humble beginnings to…