Our permanent site is on the horizon!
While our full site is still being built, we're using this platform to keep things moving.
Our Mission
To unite the ALS community in our collaborative approach to foster bold research initiatives, advance national and state advocacy efforts, and provide comprehensive care and support to individuals and families affected by ALS.
Newly Diagnosed?
You are NOT alone.
Receiving a diagnosis of ALS is challenging and overwhelming. There is so much to know, a great deal to consider, and typically a host of questions. While no two people with ALS are alike or will experience the condition the same way, there is a great deal of collective knowledge and wisdom available from health care providers, people with ALS, family members and caregivers.
A new era...
The state of Missouri and its resilient ALS community are thrilled to officially join forces with ALS United, ushering in a new era of connection, care, and collective strength. This partnership means that individuals living with ALS across Missouri now have access to a national network of support, while still benefiting from the local expertise and compassion that define their community.
This isn’t just a collaboration; it’s a declaration. Missouri stands united with others across the country, driven by the belief that Together, we end ALS.
Meet Anna Zelinske
Anna serves as your dedicated Care Services Coordinator for St. Louis and beyond, offering guidance, support, and connection from the moment of diagnosis and beyond.
Anna is here to help you and your loved ones navigate the complexities of ALS with compassion and clarity. Whether it’s finding local resources, understanding care options, or simply having someone to talk to, Anna is by your side; ensuring you never face this journey alone.
Upcoming Workshops
Taking Care of the Caregiver | Tuesday, November 18th (Online Zoom)
