Month: March 2024

Understanding ALS Twitching

March 29, 2024 Comments Off on Understanding ALS Twitching

Introduction to ALS Understanding ALS Amyotrophic Lateral Sclerosis (ALS), commonly known as Lou Gehrig’s disease, is a progressive neurodegenerative condition with a profound impact on the body’s motor functions. It…

ALS Movies and Documentaries

March 28, 2024 Comments Off on ALS Movies and Documentaries

Introduction to ALS Understanding ALS Amyotrophic lateral sclerosis (ALS), often referred to as Lou Gehrig’s disease, is a progressive, neurodegenerative disease that affects nerve cells in the brain and spinal…

Understanding Bulbar ALS: Symptoms, Timeline, and Life Expectancy

March 27, 2024 Comments Off on Understanding Bulbar ALS: Symptoms, Timeline, and Life Expectancy

Introduction to Bulbar ALS Overview of Bulbar ALS ALS, also known as Lou Gehrig’s Disease, is a neurodegenerative condition that involves the breakdown of nerve cells in the brain and…

Kids Need Support Too

March 26, 2024 Comments Off on Kids Need Support Too

Brianna Neal, MSW, LSW, Care Services Coordinator – Social Worker Parental illness or illness of a loved one can be as traumatic to a child as it is to the…

Management and Prevention of Constipation in ALS

March 25, 2024 Comments Off on Management and Prevention of Constipation in ALS

Gema Ramos, RN, Care Services Coordinator, ALS United Greater Chicago Constipation is defined as having a bowel movement fewer than three times per week generally with hard, dry stools, difficulty…

Making the Most of Your ALS Multidisciplinary Clinic Visit

March 24, 2024 Comments Off on Making the Most of Your ALS Multidisciplinary Clinic Visit

Peggy O’Connor, RN, BSN, Director of Care Services, ALS United Greater Chicago ALS affects many aspects of health and function, and research clearly demonstrates the benefit of multidisciplinary care. Those…

Bridging Borders: ALS Care Worldwide

March 23, 2024 Comments Off on Bridging Borders: ALS Care Worldwide

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Greater Chicago ALS United Greater Chicago Highlights from the ALS/MND Alliance and Allied Professional Forum Meetings in Basel, Switzerland…

Why I Participate in ALS Research

March 22, 2024 Comments Off on Why I Participate in ALS Research

Jackie Nauth “My mom, Sandra Morgan, was diagnosed with sporadic ALS in 2008 and died in 2010. In 2014, her sister was diagnosed with ALS. I reached out to the…

Navigating Genetic Testing in ALS

March 21, 2024 Comments Off on Navigating Genetic Testing in ALS

Understanding Options, Benefits, and Cost Rich Dineen, MS, CGC, Certified Genetic Counselor, Section of Neuromuscular Disease, Rush University Medical Center Many individuals and families have questions regarding genetic testing options…

Advancements in ALS Research

March 20, 2024 Comments Off on Advancements in ALS Research

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Greater Chicago Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that significantly impacts nerve cells in the brain…