Month: November 2023

Doug Jury, ALS Advocate and Individual Living with ALS In April of 2023, ALS volunteers and leading advocates held more than 200 meetings with members of Congress and their staff,…

Angela Loewen, MS, RDN, LDN, CNSC, Clinical Dietitian, UChicago Medicine Smoothies offer a delectable and nutritious option to address the dietary needs of people living with ALS. As ALS progresses,…

Richard Ted Wlodarski, MD, ALS Clinic Director, NorthShore University Health System ALS United Greater Chicago partnered with NorthShore University Health System in 2016 to establish the first suburban multidisciplinary ALS…

Gema Ramos, RN, Care Services Coordinator, ALS United Greater Chicago Typical Waiting Times to Receive Durable Medical Equipment (DME) After a clinic visit, the ALS Clinic Team typically recommends Durable…

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Greater Chicago Driving is fundamental for personal independence and mobility for many individuals. However, when neurological disabilities such as…

Sue Bowes, MSW, LCSW, Northern Illinois Care Services Coordinator, ALS United Greater Chicago Allow me to introduce myself. My name is Sue Bowes, MSW, LCSW, I am the newest member…

Kellie Branch-Dircks, MSW, LCSW, Central Illinois Care Services Coordinator, ALS United Greater Chicago Hello, Central Illinois! I hope you have had a pleasant summer and great start to the fall.…

Gema Ramos, RN, Care Services Coordinator, ALS United Greater Chicago Being a caregiver can be very challenging and difficult, especially for a caregiver taking care of an individual with ALS.…

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Greater Chicago Individuals living with ALS require specialized care and equipment to improve their quality of life and maintain…

Michelle Francis, Individual Living with ALS “Are you on tofersen? The drug works specifically for people with SOD1-ALS.” “Tofersen is going through FDA approval now, but you should try to…